life with type 1 diabetes

Tag: We Are Not Waiting

Still. In. Range.

OpenAPS NightScout Dashboard

OpenAPS NightScout Dashboard

I posted this image on twitter already, but it warrants further explanation… at 9:30am I had a physical therapy appointment, at previous appointments I had to remember to set a temp basal and if I didn’t remember ahead of time I would end up dropping low and many times had to have carbs to correct — today I pushed a button on my apple watch and set a “pre-activity” temp basal when I arrived at PT and rode through it without a low. Then I had lunch at 12:30… when I ordered my food I hit the “eating soon” button, again on my watch without having to even take out my phone or my pump… then bolused for the sandwich when it arrived to the table, and look! still even. AFTER WORKING OUT AND EATING I AM STILL EVEN… I’m not sure how else to explain how incredibly awesome this is… thank you #OpenAPS

Performance Anxiety? Or something more?

I was so excited when the last of my xDrip build kit arrived, I ripped open the box… and then the box sat there. next to my couch. for over a week. Am I nervous I won’t be able to build the xDrip? Sort of, but there’s more. Continuing the theme of resentment, I just don’t want to need anything to stay alive. I want to be able to be a cave man and live in the woods and eat squirrels… okay, so I said “want to be able to” not “want to,” but seriously, it freaks me out that if all infrastructure went to shit that I couldn’t survive in the wild… I would die, I’m who Darwin decided wouldn’t get to come along with the rest of the class. Fuck Diabetes. I guess I’m back to being angry again… so much for bargaining. Sometimes the grief process feels more like a merry-go-round than anything else… except I’m yet to figure out how to get off. I’m so tired of being diabetic. even just typing that, I thought to myself, “am I really?” — and then that logical side of my brain says “really?! did you just think that?! are you an idiot?” I wish this would just go away. Thinking about all of this hurts. I found My Diabetes Secret () yesterday… an anonymous Tumblr for diabetes feelings… talk about a baseball bat to the stomach, the idea is amazing, what I felt when I really let myself feel instead of managing symptoms or explaining myself to others, was not amazing. It was horrible. I had no idea I was still so upset, and scared, and mad, and all of the feelings. which brings me back to the box next to my couch… I can build the xDrip, I can choose to not build the xDrip, I will still have diabetes. I might as well have fun… here goes nothing… keep your fingers crossed for me…

the kit is here! time to get building!!


I AM SO EXCITED. the kit has arrived… time to build a workstation and get this project going!!! I still have not idea if I can still solder or if it’s going to be a total disaster… TBD. Seriously, I am using putting my xDrip building station as bait for getting the rest of my work-work done today… ahhhh! SO. EXCITED. CAN’T HOLD IT IN!!!! Project time!!!!!

Preparing for your Night Scout Build – Extra Help

I had a great time building my Night Scout, but I was really nervous about having the right parts to complete the build. The directions for building the Night Scout are incredibly detailed and amazing, that being said, sometimes I need a little extra help — here are some extra pictures and detail to help you prepare before starting your Night Scout build.  I have explained my decisions, but if you want the a + b directions they are in blue bold text through out this post.

First to clarify, I am building the least complicated model — just the Dexcom reciever to an android phone, not including the pebble or any other additional device (I plan to add/upgrade later).

Physical Components: 

The 4 things you need: Dexcom G4 Receiver, USB to mini USB cable (same as the cable used to charge your Dexcom), Smartphone supporting USB OTC and an OTC cable

1) Your Dexcom G4 Receiver and the USB to mini USB cable used to charge your Dexcom (any USB to USB mini cable can be used)

2) Smartphone supporting USB OTC — I could attempt to explain, or link to explanations, of OTC technology and how to tell if a phone is going to work, but our reality is that we just want this to work… with that in mind, I highly suggest just buying a phone that has been validated rather than going through your build and being frustrated by it not working. The Night Scout Build Page give a full list of phones that work with carrier details and a list of phones that have not worked. Here is a consolidated list of devices that I used to determine which phone to buy.

From looking at this list, and reading other people’s build stories, I would recommend picking up a version of the Samsung Galaxy (Other than the Mini or the Core Prime, see my simplified list of OTC phones)  — that being said, for cost purposes, since the phone does not need to work as a phone, only as a data transfer device, picking up any proven phone model from eBay or a certified pre-owed from your current cell phone carrier is a totally valid option. I fully tested my rig with an eBay purchased Samsung Galaxy 3 on wifi only, before investing in adding an additional phone to my wireless plan (enabling my Night Scout to work when wifi is not available).

The phone must be running Android v 4.x for the Night Scout app to work. If you are also interested in building the xDrip device the device will need to be on Android v 4.3 in order to support BLE.

3) OTC Cable(s) – again, here I could explain/link to explanations, but rather than all that — this is the OTC cable I purchased, I prefer the “L” shaped end of the cable to help minimize the chances of the cables being knocked loose. The linked cable is a two pack, as with any other technology, I would recommend at least two cables for replacement purposes, but also for testing, to ensure your rig is working (see other Night Scout documentation for more information on cables, replacements/reliability).

My current rig consists of a Samsung Galaxy 3 purchased on eBay, previously used on Verizon, the above linked OTC cable,  my Dexcom G4 receiver and a USB to USB mini cable as pictured below.

Once you have the components — I suggest that you verify your version of the Android operating system before starting with the build. 

Now you are ready to build your Night Scout device! Start here!

Simplified Night Scout Phone List

Below is the summarized list of phones that I used to make my decision when building my Night Scout Device*

Night Scout Phone List


*It should be noted I compiled this list based on available Night Scout information, after first failing using another phone. Additionally, this list does not include carrier information, some phones have only been tested on specific carriers, for my purposes I assumed that the technology was based on the device and would be compatible with a wifi only build, and then later with a build on a major carrier — this is not necessarily true, it was my assumption that has held so far for my builds.

Night Scout Victory! and my next project…

So I got the new phone (samsung galaxy 3)… and it worked. So excited. Like I said before, I won’t necessarily be using this all the time, but it was cool to see how it worked — and if I were a parent rather than the type 1, I’m sure I would be more keen to use it everyday. The next project I’m looking at is the xdrip (formerly DexDrip) that was  — you can find an intro here. The xDrip is a project put together by Stephen Black (@StephenIsTaken) that is so cool — find the git info here — basically taking NightScout and getting rid of the cable, Dexcom G4 to android without dexcom share — and then on top of that there is NightWatch that takes the information from xDrip, NightScout, or DexShare, and transmits to an android wear device.

I know that I will have this Dex-to-wrist capability once I get my new DexShare receiver and Apple Watch (both pending arrival), but until they arrive, and also because I think it will be fun to see how it works, I will be starting on this project.

I fell like I have just opened my eyes to trying to live a better life instead of just knowing there is a way and being stuck in fear that nothing will work and I’ll still be stuck where I am… if I don’t try I’ll still be here anyway, at least if I do try I get to keep working on really cool projects… next up, wireless xDrip bridge…

@NightscoutProj  @StephenIsTaken #WeAreNotWaiting

Night Scout Project… in progress

Screen Shot 2015-05-07 at 5.17.32 PM — @NightScoutProj — #WeAreNotWaiting — #Awesome

So I got over my pride of “I don’t need this” and “I should know how to do this” and decided to build a night scout rig… even though there is no way in hell I am letting my parents monitor my numbers from across the country (perks of a late diagnosis), I could transmit to see my numbers from my primary phone so I don’t have to pull the dexcom out of my briefcase all the time… I think it’s over kill for me, but I want to understand how it works, it is ridiculous that this doesn’t exist already… I am learning more about it so I can be part of the solution.

Progress: I have the db end all setup (great directions!) — ordered the right OTC cable (plus a spare) from amazon… Best Buy was even less helpful than I expected them to be… then neither of the android phones I have seemed to work (one that I bought for the project and one that I had laying around), so I bought a Samsung Galaxy 3 that has been proven to work according to the Night Scout documentation — it arrived today, it’s charging now, so I’m hoping to get a working rig together tonight…


@NightscoutProj #WeAreNotWaiting