life with type 1 diabetes

Month: May 2015 (Page 2 of 2)

you don’t have to be okay, and everything doesn’t have to be fine

these words might sound kind of depressing out of context, but when a friend said this to me it was absolutely freeing… I was ramping up to a full scale panic attack, trigger by something I couldn’t identify, scaring the crap out of people around me (or so I thought) — as I was slowly backing away from friendly faces as if they were trying to mug me in a dark alley, all I can remember saying over and over again is “I’m okay, everything is fine.” And through the mist, a voice of a friend, a new friend at that point, telling me that I was okay as I was, even in my not-okay-ness. “you don’t have to be okay and everything doesn’t have to be fine.” it was like someone pulled the power cord from my panic attack… I have been to a lot of therapy and no therapist has been able to diffuse me that fast. I was all of a sudden okay in my not-okay-ness, I was still scared and shook up, and left to try to explain myself, but with the knowledge that someone else understood enough to meet me where I was, and love me enough not to ask me to change or fix myself — that I was enough, even in my unravelled state.

I still don’t remember what had spooked me so bad, I give it an 89% chance that it had to do with diabetes… scratch that… everything in my life has to do with diabetes… but seriously, I don’t even know. What I do know is that this little piece of wisdom is applicable in every single part of my life. Yes, I am happy to report that sometimes I am okay and everything is fine or I am even better than fine and life is fantastic, but remembering that I don’t have to force everything to be okay all the time, or pretend that it is, is a wonderful thing. the end.

Night Scout Victory! and my next project…

So I got the new phone (samsung galaxy 3)… and it worked. So excited. Like I said before, I won’t necessarily be using this all the time, but it was cool to see how it worked — and if I were a parent rather than the type 1, I’m sure I would be more keen to use it everyday. The next project I’m looking at is the xdrip (formerly DexDrip) that was  — you can find an intro here. The xDrip is a project put together by Stephen Black (@StephenIsTaken) that is so cool — find the git info here — basically taking NightScout and getting rid of the cable, Dexcom G4 to android without dexcom share — and then on top of that there is NightWatch that takes the information from xDrip, NightScout, or DexShare, and transmits to an android wear device.

I know that I will have this Dex-to-wrist capability once I get my new DexShare receiver and Apple Watch (both pending arrival), but until they arrive, and also because I think it will be fun to see how it works, I will be starting on this project.

I fell like I have just opened my eyes to trying to live a better life instead of just knowing there is a way and being stuck in fear that nothing will work and I’ll still be stuck where I am… if I don’t try I’ll still be here anyway, at least if I do try I get to keep working on really cool projects… next up, wireless xDrip bridge…

@NightscoutProj  @StephenIsTaken #WeAreNotWaiting

Night Scout Project… in progress

Screen Shot 2015-05-07 at 5.17.32 PM

nightscout.info — @NightScoutProj — #WeAreNotWaiting — #Awesome

So I got over my pride of “I don’t need this” and “I should know how to do this” and decided to build a night scout rig… even though there is no way in hell I am letting my parents monitor my numbers from across the country (perks of a late diagnosis), I could transmit to see my numbers from my primary phone so I don’t have to pull the dexcom out of my briefcase all the time… I think it’s over kill for me, but I want to understand how it works, it is ridiculous that this doesn’t exist already… I am learning more about it so I can be part of the solution.

Progress: I have the db end all setup (great directions!) — ordered the right OTC cable (plus a spare) from amazon… Best Buy was even less helpful than I expected them to be… then neither of the android phones I have seemed to work (one that I bought for the project and one that I had laying around), so I bought a Samsung Galaxy 3 that has been proven to work according to the Night Scout documentation — it arrived today, it’s charging now, so I’m hoping to get a working rig together tonight…

 

@NightscoutProj #WeAreNotWaiting

A shitty doctor’s appointment… as expected

my numbers have been shit, I know this, also I was traveling which rained crap all over my routine… nevertheless I am determined to keep the travel in my routine, so I’m adjusting my diabetes around my life and not the other way around. That being said… my numbers really were shit and I did really say “fuck it” a couple times… I mean I was 300+ or under 70 pretty much the whole time I was in NYC, in Denver I mistook a sugar drop as altitude adjustment and very nearly passed out (40)… there were some learning opportunities… on the whole it was an amazing trip, a testament to the fact that I can be away if and when I need to be… that it’s okay to ask for help, and there are creative solutions for when living on my own is sub-optimal, other than hiring a nanny for myself… go me! But really my numbers are shit, so I’m getting back on that now… back to paleo light… and “remember to eat” alarms, if that’s what it takes, then there it is… today is a positive day, there was a lot of swearing about this yesterday, my lap time to sanity is getting shorter — big improvement, xo

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