life with type 1 diabetes

Tag: Diabetes (Page 2 of 3)

Preparing for your Night Scout Build – Extra Help

I had a great time building my Night Scout, but I was really nervous about having the right parts to complete the build. The directions for building the Night Scout are incredibly detailed and amazing, that being said, sometimes I need a little extra help — here are some extra pictures and detail to help you prepare before starting your Night Scout build.  I have explained my decisions, but if you want the a + b directions they are in blue bold text through out this post.

First to clarify, I am building the least complicated model — just the Dexcom reciever to an android phone, not including the pebble or any other additional device (I plan to add/upgrade later).

Physical Components: 

The 4 things you need: Dexcom G4 Receiver, USB to mini USB cable (same as the cable used to charge your Dexcom), Smartphone supporting USB OTC and an OTC cable

1) Your Dexcom G4 Receiver and the USB to mini USB cable used to charge your Dexcom (any USB to USB mini cable can be used)

2) Smartphone supporting USB OTC — I could attempt to explain, or link to explanations, of OTC technology and how to tell if a phone is going to work, but our reality is that we just want this to work… with that in mind, I highly suggest just buying a phone that has been validated rather than going through your build and being frustrated by it not working. The Night Scout Build Page give a full list of phones that work with carrier details and a list of phones that have not worked. Here is a consolidated list of devices that I used to determine which phone to buy.

From looking at this list, and reading other people’s build stories, I would recommend picking up a version of the Samsung Galaxy (Other than the Mini or the Core Prime, see my simplified list of OTC phones)  — that being said, for cost purposes, since the phone does not need to work as a phone, only as a data transfer device, picking up any proven phone model from eBay or a certified pre-owed from your current cell phone carrier is a totally valid option. I fully tested my rig with an eBay purchased Samsung Galaxy 3 on wifi only, before investing in adding an additional phone to my wireless plan (enabling my Night Scout to work when wifi is not available).

The phone must be running Android v 4.x for the Night Scout app to work. If you are also interested in building the xDrip device the device will need to be on Android v 4.3 in order to support BLE.

3) OTC Cable(s) – again, here I could explain/link to explanations, but rather than all that — this is the OTC cable I purchased, I prefer the “L” shaped end of the cable to help minimize the chances of the cables being knocked loose. The linked cable is a two pack, as with any other technology, I would recommend at least two cables for replacement purposes, but also for testing, to ensure your rig is working (see other Night Scout documentation for more information on cables, replacements/reliability).

My current rig consists of a Samsung Galaxy 3 purchased on eBay, previously used on Verizon, the above linked OTC cable,  my Dexcom G4 receiver and a USB to USB mini cable as pictured below.

Once you have the components — I suggest that you verify your version of the Android operating system before starting with the build. 

Now you are ready to build your Night Scout device! Start here!

Simplified Night Scout Phone List

Below is the summarized list of phones that I used to make my decision when building my Night Scout Device*

Night Scout Phone List

 

*It should be noted I compiled this list based on available Night Scout information, after first failing using another phone. Additionally, this list does not include carrier information, some phones have only been tested on specific carriers, for my purposes I assumed that the technology was based on the device and would be compatible with a wifi only build, and then later with a build on a major carrier — this is not necessarily true, it was my assumption that has held so far for my builds.

A shitty doctor’s appointment… as expected

my numbers have been shit, I know this, also I was traveling which rained crap all over my routine… nevertheless I am determined to keep the travel in my routine, so I’m adjusting my diabetes around my life and not the other way around. That being said… my numbers really were shit and I did really say “fuck it” a couple times… I mean I was 300+ or under 70 pretty much the whole time I was in NYC, in Denver I mistook a sugar drop as altitude adjustment and very nearly passed out (40)… there were some learning opportunities… on the whole it was an amazing trip, a testament to the fact that I can be away if and when I need to be… that it’s okay to ask for help, and there are creative solutions for when living on my own is sub-optimal, other than hiring a nanny for myself… go me! But really my numbers are shit, so I’m getting back on that now… back to paleo light… and “remember to eat” alarms, if that’s what it takes, then there it is… today is a positive day, there was a lot of swearing about this yesterday, my lap time to sanity is getting shorter — big improvement, xo

mystery and danger?

meh, not so much…. Mystery and Danger of Type 1 Diabetes, an NYT article found here

so far as I understand the article it breaks down to

stress > destabilization of immune system > Type 1 diabetes

while I agree with the premise, it’s basically republishing of really simple information — Type 1 is an autoimmune disease, it is different than Type 2 and it’s annoying to have to explain the difference to everyone who’s grandmother/uncle/sister had diabetes and was able to get rid of it by working out more, or still has it because they exist off of mountain dew and cheetos… no, I’m not bitter or angry and all… working through it… anyway, while nice for Type 1 and the difference between Type 1 and Type 2 to get some press, it’s not exactly ground breaking, or all that interesting if you have a basic understanding of autoimmune disorders.

back on the horse… a new horse

so here’s the deal… I feel better when I do the shit that I know I should be doing (go figure)… get enough sleep, wake up at the same time, eat at the same times and on a regular schedule… walk in the am… and like magic my body needs less insulin, I feel better… and then I stop jacking up on caffeine and my anxiety totally levels out… I know it’s rocket science-y level shit. But here’s the thing, sometimes I still don’t do this stuff… I’m getting better. I’ve started a nutrition program through a friend and my sugars have become stable… like stupid ridiculous stable. I’ve upped my protein level, taken gluten out (again)… and I feel so much better, it’s like everything in my body is moving again. I’ve been walking in the morning too… that has made a big difference in the rest of my day, both with my sugars and with my mood, outlook… a lot of the time I walk down to the beach, I am always insight of the water, something to be grateful for — so many things to be grateful for… like being in a grateful mood right now, so next time I’m in a shit mood I can look back at this and remember that shit moods always end.

Yesterday I had to eat a bed time snack… I resent having to eat at night because it doesn’t match up with my health/fitness goals… but I was a bit low (80), too low to go to sleep without an assured dexcom wakeup 2 hours later… so I ate a rice cake with almond butter… and then another one, and then I ate almond butter out of the jar… because I triggered the hunger monster… and because deep down (sometimes not so deep down at all) I am SUPER resentful at Diabetes. Why should I have to eat when I don’t want to — it sucks. This morning I woke up in the 200s, a carb “hangover” if you will…I had two choices, I could say fuck it, skip breakfast like I prefer to, skip my walk because it’s “inconvenient” today, and sit right down to “work”… or I could do what I know works… go for a walk, down a protein shake, and start over today, at that moment… so that’s what I did… 12-ish hours later I’m back in the 140s and dropping down a bit… still fighting the fishtail effect from being so high… I should test and eat… so I think I will. I’m choosing me, my health, and trying to get out of my own way in the process. Life is good, the guidance is there… now I just have to put one foot in front of the other… xo

Big Picture Diabetes Visualization

The tool I have been using to create the visualizations of my numbers is called Tableau — as I was looking through Tableau Viz of the Day Gallery, I found this great viz on the Prevalence of Diabetes in adults (20-79 yo) by Ramon Martinez. Ramon publishes a blog focused on analyzing health data at the population level — the post accompanying this viz has some additional insight on the data presented.

 

and the science project continues…

DualBloodSugarOverTime

Creating dashboards to answer questions — my question is how am I doing now, as opposed to then? and I want to be able to change both of those time frames… comparing this week to last year, this week to last week, this month to last month, to the last three months… and so I created this dashboard. Above is just an image, I’ve started using a bit more technical solutions, so I’m going to be posting image files for a bit until I get a better process in place to use the publicly available/postable versions again.

[Data Dork Stuff] I figured out that the export file I was creating was cutting off at 65,536… does that number ring a bell? Yup, that’s right — the export file was .xls and not .xlsx — I can’t believe that I missed that #dorkfail — so this explained why my data was cutting off in December, in order to resolve this issue I had to export the data from the data blending tool into a Tableau Extract rather than and Excel file, since .xlsx isn’t an export option (#softwarefail #upgraderequest). Building visualizations from a Tableau extract requires using Tableau Desktop, rather than Tableau Public — like I said, I’m working on finding a way back onto public with this data, so that the dynamic versions can be shared here… and elsewhere without the need to use the desktop software. [Other tools] Looking at bringing together data from my OmniPod and my Dexcom — I used Diasense to get a sense (womp womp) for what I’m bringing together. I love their idea, and the tool — but I hate the interface. Okay, hate is a strong word (and I did just say I love the tool <3), but I love data, and I know that it can be displayed in a way that not only looks better, but is more conducive to helping diabetics understand their own bodies and support actionable decisions in their/my daily life. Next Steps… OmniPod data…

In other news, I’m really struggling staying on a diabetic diet — I eat breakfast, I snack smart, I get all the way to the evening and then I get a case of the fuck-its, except while still hearing reason in my head… it’s maddening. Hoping look at all this data will help me see what I need to see clearly… and help me to make the right decisions, or at least the right next step.

Diabetic Dashboard

People ask “How are you doing?” all the time, usually I answer with “fine”… well here’s a more comprehensive and Illustrative answer…
 

 

This is my latest take on something that could help me to better understand my diabetes and how to manage it. For right now I’m really just reporting findings, but as I get a better sense as to what I can pull out of my devices, I will switch gears into focusing on insights that I can pull out of the information.

Let me start by saying that I used professional tools to get to this point — I could have stuck to excel, but it would have taken me a lot longer and wouldn’t have been a repeatable process. My goal is to hone this process, so I can get as close to real time as possible — based on the level of effort required, I think that the most practical estimate for this is probably a weekly report, but the process is going to need work to even get to that point.

How did I get here? [the geeky stuff] Dexcom reports out two sets of numbers — the meter values that you input to the receiver (calibrating it), and the reported values that show on the screen every five minutes, these two sets of data are reported separately, but in the same worksheet. To add to this, when I updated the software on my Dexcom receiver it archived my file to date and created a new file, so I have to files one from when I started with the Dexcom to the software update, and then one from the software update to present day. What I needed to do was split and clean two data files, and then add together the corresponding parts, from there, I added an additional field identifying each of the data points as either being a “Meter Value” or a “Dexcom Reading” — which then enabled me to join the two tables back together as a single table with the fields of Time, Blood Glucose, and Type. This is the data set that I pulled into TableauPublic to build the visualization below. There were around 65k records, so we have a good bit of time in TableauPublic before we will have to think about filtering the data set down in anyway.

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