Dear Diabetes, you suck.

a front end developer who also happens to have type 1 diabetes

Phantom Sensors

PoofMoving the omnipod around has had an odd side effect. I am rightly sensitive/protective of my “equipment” … still haven’t found the right word. If either my dexcom or omnipod are pulled/ripped off or dislodged in any way, or even jostled out of place in the wrong way, they will not work — this is not only unsafe for me, as I wear them for a reason, but it’s also expensive if I have to replace the sensors more than prescribed. then there’s also the matter of just feeling the “equipment” on my body. when I roll over in bed. when I put my hand in my pocket because I think my keys are in there, and it turns out it’s my sensor. I catch it on something or I can just feel it when sitting in a chair, or leaning against something — needing to make sure that the way I’m leaning isn’t pulling it away from my body… here’s the thing though… I’m now feeling my sensor in places that they’re not… more than once now, I’ve been sitting and reached back check that my omnipod is okay — and it’s on my arm. I twist one way to grab something and then check that my dexcom is okay… it’s on the other side. Now, not only am I avoid/protecting my “equipment” but I’m also avoid/protecting anywhere I place equipment all the time, whether or not there is any “equipment” there. fuck this. where can I opt out. I’m so done. I hate that this is changing my behavior. I hate that I am having to change my behavior for this disease. or that this disease is forcing changes in my life. or that I have to make changes in my behavior for this device. this is all chicken and the egg bullshit. I’m just mad. fuck diabetes.

2 Comments

  1. If it’s any consolation, whenever I hate my diabetes I try to remember I am so, so lucky to have the disease in a first world country where I have easy access to medical care and supplies. There are children around the world dying because they can’t access insulin or other supplies.
    But totally fuck diabetes haha. 🙂

    • I hear you… sometimes thinking about that helps. We are very blessed to have access to the level of care we do in the US. Although, it doesn’t stop me from swearing at it, haha.

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